Enshrinement Parade and Ride Wrap-up

We had a fantastic time at the 2011 College Football Hall of Fame Enshrinement parade. Thank you, Victoria Maione, for inviting us to be a part of this event. Thank you, likewise, to everyone who came to support Renate and me and biked with us! We really appreciate you joining us early in the morning on a weekend and on what proved to be a very hot day shortly after the sun came up. It almost reminded us of biking through North Carolina and Tennessee, where it was already 80F when we left at the crack of dawn each day. We showed off our support van, and it got many more signatures, both before the parade and afterwards, during the festivities in front of the College Football Hall of Fame.

The parade proved to be a perfect conclusion to our ride. Riding past the Hall of Fame, where Coach Ara Parseghian was inducted in 1980, 14 years prior to finding out that his grandchildren – Michael, Marcia and Christa – had Niemann-Pick Type C, we were thinking about the meaning and purpose of our ride and all of our fundraising efforts: to defeat this terrible disease once and for all, so that no parent or grandparent ever had to endure again what the Parseghians endured and what so many other NPC families struggle against every day to save their children.

We would like to thank everyone who helped us and supported us in the organization and execution of the Road to Discovery ride. We couldn’t have done it without all of your participation and encouragement. We thank the families and researchers who met with us along our route to help us spread their message and publicize their cause. We thank all the Notre Dame alumni and friends who went out of their way to meet with us and host us in their homes. We thank everyone who donated so generously to this cause; without funding, research and advances towards a cure or treatment would not be possible. And finally we thank our families: our parents, siblings, and our two lovely daughters, Ally and Michaela, for all the love and support they gave us on the ride.



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